Abstract
Purpose: Supported self-management (SSM) is an important part of adapting to life after stroke however it is a complex concept. It is unclear what SSM in stroke consists of or how stroke survivors, families, and clinicians can most effectively work together to support person-centred self-management. In this study, we aimed to explore what was most important in making SSM work in community stroke rehabilitation.
Methods: We conducted a Q-methodology study with stroke survivors (n ¼ 20), community-based stroke clinicians (n ¼ 20), and team managers (n ¼ 8) across four health boards in Scotland, United Kingdom. Participants ranked 32 statements according to their importance in making SSM work. Factor analysis was used to identify shared viewpoints.
Results: We identified four viewpoints: (i) A person-centred approach to build self-confidence and self-worth; (ii) Feeling heard, understood, and supported by everybody; (iii) Preparation of appropriate resources; and (iv) Right thing, right place, right time for the individual. Important across all viewpoints were: a trusting supportive relationship; working in partnership; focusing on meaningful goals; and building self-confidence.
Conclusions: Differing views exist on what is most important in SSM. These views could be used to inform quality improvement strategies to support the delivery of SSM that considers the preferences of stroke survivors.
Methods: We conducted a Q-methodology study with stroke survivors (n ¼ 20), community-based stroke clinicians (n ¼ 20), and team managers (n ¼ 8) across four health boards in Scotland, United Kingdom. Participants ranked 32 statements according to their importance in making SSM work. Factor analysis was used to identify shared viewpoints.
Results: We identified four viewpoints: (i) A person-centred approach to build self-confidence and self-worth; (ii) Feeling heard, understood, and supported by everybody; (iii) Preparation of appropriate resources; and (iv) Right thing, right place, right time for the individual. Important across all viewpoints were: a trusting supportive relationship; working in partnership; focusing on meaningful goals; and building self-confidence.
Conclusions: Differing views exist on what is most important in SSM. These views could be used to inform quality improvement strategies to support the delivery of SSM that considers the preferences of stroke survivors.
| Original language | English |
|---|---|
| Pages (from-to) | 2307-2315 |
| Number of pages | 9 |
| Journal | Disability and Rehabilitation |
| Volume | 45 |
| Issue number | 14 |
| Early online date | 25 Jun 2022 |
| DOIs | |
| Publication status | Published - 2023 |
Keywords
- stroke
- stroke rehabilitation
- supported self-management
- community stroke care
- Q methodology
ASJC Scopus subject areas
- Rehabilitation
Access to Document
- Millar, J. D et al (2022) What is important in supporting self-management in community stroke rehabilitation? A Q methodology study
© 2022 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.